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Za človeka gre: Relevanca znanosti in izobraževanja / All about people: Relevance of science and education 2020

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Support for families in longterm care for persons with disabilities

Introduction Aging is a common process that engages all living beings and causes changes in functioning and abilities, followed by positive and negative feelings and attitudes. There are physical and mental health disorders in the population of long-term caregivers and parents of children with disabilities. Health issues are followed with symptoms of depression, problems in social interactions and daily functioning. This paper focuses on depicting the experiences of parents of people with disabilities and their burdens on the future and the consequences that aging brings to their lives and the lives of their disabled children. Methods An appropriate sample of parents were interviewed to examine their perception of stress, the evaluation of experienced and existing support, and the overload that would occur with their children in the future. Results It has been shown that parents of children with disabilities feel that they are experiencing more stress than other people, and that the future of their children depends on them and their decisions. Parents express the hope that their children will be cared for by family members, and at last to institutions for permanent accommodation and stay.

Renata Možanić
Ustanova za zdravstvenu njegu Lekić

Zlatko Bukvić
Centar Tomislav Spoljar for upbringing and education


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